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October 10, 2005

Monday monday

I had a "perfect" sleep night planned. Do you ever do that? Plan for a good nights sleep? I have to as I do not ever sleep real well so I have to do things to help myself sleep. Last night I had fresh sheets (which always helps) total darkness (which always helps) a sleeping pill (which sometimes helps) and I was relaxed. I do not know what happened next. I could not get comfortable-my joints hurt, my bones felt like they hurt as well. I can not stand having to go back to work and not had any rest. I do not sleep like other people anymore. I used to in my LBL(life before lupus). I used to lay down and fall right asleep and stay there, now I toss and turn and can not get comfortable it is a nightmare. I am so tired all the time and I can not sleep well enough to feel better ever. My nails need done but I do not have the energy for trivial things anymore. I am lucky to take a shower and go to work. After that all bets are off :)

Have a great day all-namaste :)

Posted by Lisa at 3:57 AM | Comments (1)

October 9, 2005

Long time no see

Hi all, it has been a long time. I am trying hard to adjust to life in Naples and I have been having some health issues (as you might imagine)lupus does not take a vacation I am finding.

I went to the eye doctor here (needed new contacts) and she found 6 lesions on my right eye on the retina. She wants me to go see a retinologist however I like many americans, have no health insurance and certainly not enough money to go to one, so I do not know the full effects of the lesions on my eye.

There is not insurance offered where I work now so I have been without my meds for over a month now and it is getting worse daily, yet there is nothing I can do. We do not qualify for medicaid (too much money) and we have no insurance offered through our jobs. I have a chronic condition so we can not get a private policy-any suggestions would be greatly appreciated. This has really been alot worse than I thought it would be.

When I was first diagnosed alot of my friends felt bad for me and I told them-don't feel bad for me, I have great insurance,unlike most americans, and I have great doctors to help me. Now I have neither and it is scary to have a chronic condition and no way to get treatment of any kind.

I have no pain meds, no anti inflam meds, no thyroid meds-nothing. If I ever wondered if I needed to be on the many meds I was on, that question has been cleared up.

Other than that the kids and the hubby seem to be settling into Naples real well. We are doing pretty good as far as adjusting and I think my mother in law is thrilled to have her only son living in the same town as her again. It has been really hard on her since my father in law passed away and we are happy to be able to be here for her.

I will try to update more frequently but it is really hard-my hands hurt just from this little bit of typing and I am weak from sitting up. It takes all my energy to go to work-my house is in shambles and everything else falls by the wayside-right now every ounce of energy I have is used to go to work-need the paycheck LOL.

Take care everyone and namaste!

Posted by Lisa at 6:10 AM | Comments (1)