July 29, 2004

Triggers and support groups

I have an online support group that I go to and either vent or just touch base with others who have epilepsy. It is called Seizures Disorders R Us and it is owned by a dear friend named Jude that I met on the old UW boards. When that board was shut down, Jude started a new one.

Ok now to tell about what triggers seizures in me. There are a lot of things like flashing lights, excessive heat or cold and staying in front of the computer too long. The last one really bites because I am a graphic artist/web page designer so I can't work anymore. I was working in front of the computer a couple of weeks ago and just surfing a bit when I had a GTC (generalized tonic-clonic) or grand mal seizure. I hate when that happens.

Posted by Rose S. on July 29, 2004 4:36 PM