September 13, 2004

I really like my new neuro. He has ordered a sleep deprived EEG for tomorrow, which means I need to stay up all night and then have the test in the morning. Dr. Elsas Is a professor at OSU. He is doing a study about epilepsy and behavior modification so I may have a chance to be a part of that. I filled out all the questions and will know as soon as he gets the MRI back from my old neuro and the results of this EEG. I will keep everyone posted on how it goes.

Posted by Rose S. at 3:18 PM | Comments (5)

September 8, 2004

Tomorrow I go to OHSU for a neurology consult. I was sent all the stuff telling me that I should expect to be there at least 2 hours. This is not a bad thing. I have to remind myself to let them know that my old neuro wrote me script for a seizure alert dog. Maybe this new doctor will too.

Posted by Rose S. at 10:09 PM

September 2, 2004

Ok, today I thought I was going to have a GTC right in the middle of the mall. I started smelling that really weird smell and had to stop for a second. That meant stopping, grabbing some lunch and sitting there. Turns out it was the Cajun place in the food court! I was so happy that I wasn't going to fall down right there. I knew I had taken my morning dose of Tegretol so I shouldn't have been worried, but oh well....

Posted by Rose S. at 4:43 PM

August 24, 2004

Well it's been one of those weeks. Between my fiance having seizures and my son's friend having to go to the ER today, I really don't need any more stress. Stress is a seizure trigger and I need to keep away from that. I have to take my medication yet so that I don't have one. I also need to get some more rest. I have been up most of the night watching and taking care of Michael.

Posted by Rose S. at 6:47 AM

August 22, 2004

Last night I had a discussion about seizures among other things with Michael. He is newly diagnosed with recurrent seizure disorder and was saying how frightening they were for him. I told him that I knew it sounded simple coming from me but that he has to keep reminding himself every day that they are just a part of his life. If he follows the regimen that he has to, like taking his medication, eating balanced diets, taking breaks from the computer and not spending hours at a time on it, working on maintaining a low stress environment, and just basically keeping away from all the normal triggers, he will be fine. That sounds easy coming from someone who has been dealing with seizures for the better part of her adult life. Now if only I could talk myself into following this in another area of my life!

Posted by Rose S. at 10:40 AM | Comments (1)